Welcome

This blog is first and foremost for me...
(I'm a Mom, there's not a lot in my life that's just for me anymore!). I also wanted to create a healthier way to share and vent my feelings about being physically limited... the other option was to scream and curse a lot, not so productive or healthy :o)


Second, I wanted to create a blog that other disabled and/or physically challenged parents could check out from time to time. Being a parent is extremely rewarding, but it's also a really tough job. Add pain and not-so-functional body parts and calling it a challenge doesn't even come close.

Thank you for reading.
I hope you find something helpful here. Sometimes it's nice just to know there are others out there, floating in the same waters, keeping a leaky boat afloat...




Monday, June 16, 2008

introductions...

so... gimpy mom? guess that needs to be explained.

I'm 30 years old (31 in a month), I'm a mom to one practically perfect son, and I have congenital developmental hip dysplasia... ugh. I'm a registered nurse too, so I will attempt to avoid ridiculously large annoying medical terminology whenever possible. But I want to start this off the right way with total clarity. So, here's the hip explanation: I was born with hip dysplasia. That means my hip joints didn't form correctly, specifically my acetabulum is too shallow, or in English, the socket of the ball and socket joint is too shallow and kind of wonky. It's normally diagnosed at birth or in the first year of life. In fact they should check your baby, any baby, at every "well-child" visit to the pediatrician. Obviously mine didn't. So here I am 30 and approaching my 3rd hip surgery on the right, the left side has behaved quite well since the original corrective surgery when I was 16. Did I mention that already? When I was 16 I had hip pain, rather abnormal for a teenager, so they did xrays and low and behold I was diagnosed with hip dysplasia. 12 years too late, my orthopedist explained to us, sending my Mom into a guilty crying jag for the rest of the day. Turns out if they had caught it before my 4th birthday I could have been corrected to near normal. They didn't, hence my current painful condition. I had bilateral Chiari Osteotomies at age 16, 6 months apart. They seem to be calling that surgery Peri-acetabular osteotomies now, or PAO. Guess that's a hell of a lot easier to pronounce!

Honestly, I'm really pissed off about the whole thing. I figured this blog would be a great way to vent
and let off some steam about dealing with life physically limited and in pain.
I should mention that it's not all doom and gloom. I
have a wonderful life otherwise, went to college, married an amazing man who actually loves me and I get to stay home full time with our totally adorable, light of my life son (sorry for the cheese, but seriously kids are really amazing and when you have your own it's totally life altering).

I guess that's it for now, I'll be in touch...

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